Induction Chemo Finished


December 23, 2016



Up, up, and away!
     It has been a while since my last post.  We went on vacation and it took me a while to get back to my regular schedule. 😉 Mexico was a relaxing time spent with our friends Bob and Karen.  I parasailed for the first time - it was like flying, I loved it!  We spent a lot of time under the palapas on the beach not doing much . . . it was great!  
Crooning with the Mariachi Band 
Mexican Fiesta Frivolity



     I am done with my Induction Chemo!!  I am now off treatment for 2 weeks. I feel like a kid on Christmas break! I am overwhelmed with the love sent my way these past 18 weeks since I was diagnosed.   Thank you so much for your support in encouragement and prayers. You have made a huge difference in my treatment for the good. Thank you so much.  Wait a minute, did I say 18 weeks? . . .has it really only been 18 weeks??  Hum, it seems like a lot longer, . . . well - when I think about what is next. . .😧 I think that 18 weeks flew by! 

     I need/want to get a wig for when my hair falls out.  Thankfully, my insurance will pay for it as long as I get one from an in network supplier.  Unfortunately, the closest supplier is about 600 miles, round trip, away.  After several calls to my insurance, getting different information with the same inquiry, I came upon an avenue that looked like it would pan out.  Panning out through the insurance company, though, is still jumping through ridiculous hoops.  Long story short, I got permission to use a supplier in Chicago and just in time.  Stephanie, Kerstin and I took a day trip to the big city this week and came home with a beautiful wig.  It was very helpful to have their input.  I am so thankful for God’s provision and timing.

I want to thank you for taking time to read my blog.  Your prayers and concern mean so much to me and I value each one of you.  I am praying this Christmas season you will have time to reflect on the goodness of God and enjoy memorable times with your family and friends.

Merry Christmas and Happy New Year











Dr. Visit & Mexico

  
November 15, 2016



Kerstin's visit - she is the selfie queen!
     I had my 11th chemo this week, only 5 to go!  It has been such a beautiful Fall this year.  The colors have been spectacular and the weather unseasonably warm.  Stephanie and Kerstin spent their Fall breaks with us  on consecutive weekends so we had a wonderful time with them.  Karly came up for a short visit a week before that.  Adam lives 5 minutes away and drops in often. He is a husband and father now and I enjoy this new side of him.  He loves his girls so much and is so sweet to them.  It is always a blessing for me when I get to spend time with my children - they are the best!! 
    
     We went to Northwestern this week for testing and to see the doctor. We met with the Transplant Coordinating Nurse who talked us through the whole procedure.  We also met with a Social Worker who helped us understand logistics and services available to us. Then we spent the majority of the day taking all of the tests needed to be cleared for the transplant, including 22, yes, twenty-two vials of blood!!  

     Our last appointment was with Dr. Mehta. He explained that since I am high risk, he wants me to do an extra chemo before they start the stem cell collection. 
    
     On January 3, I will be admitted into NW hospital to receive a chemo cocktail of three drugs, infused for four days around the clock.  I will go home for 10 days to recover.  I will be sick and lose my hair after this chemo. I will then go back for the stem cell collection.  It will take 1 - 5 days to collect the required number of cells. Cells  are collected out of the blood similarly to doing dialysis.  When enough cells for 4 transplants are collected, (I will only have 2 transplants, Lord willing)  I will  go home to recover for two weeks.  
    
     On January 30th, I will be admitted for the transplant. I will receive a very toxic chemo to kill all my bone marrow and the next day, I will have my stem cells transplanted back into my blood. The stem cells somehow find their way to the inside of my bones and start making the required cells for making up my blood. Isn't that amazing!!  I am astounded that scientists have figured this out, but I am even more overwhelmed by the complexity of our bodies, God's creation. He is so far beyond our minds comprehension, yet he humbles himself to  live inside every believer.  He is so amazing!  We are so blessed!
   
      I will stay in the hospital for 2 to 3 weeks as I will have no immunities.  I will likely be very sick as well.  Then I go home to recover. That is it! . . . until I go back in 3 to 6 months to do a second transplant with stem cells already taken and frozen. 
    
      It's a long process, but I do not dread it, I look forward to getting it done.  After the second transplant, I can start working on building back my strength and growing my hair back!  I have been told several times that it may grow back a different texture and even color?!  I can't wait to see my new 'do!  I will be very happy to be able to do the things I used to do.  I will be considered cancer free, although it will never be gone with the science known today, but it buys time for new discoveries. I will keep doing a maintenance chemo once a month to keep the cancer at bay, Lord willing. 
    
       The day before we went to the doctor, I developed a rash on my torso.  Dr. Mehta took me off  Bactrim as I may have developed an allergy to sulfa. We left for Mexico 3 days later, so he ordered several drugs that I now have with me, and gave me his personal number to call if it gets worse so he can give me instructions. It is very itchy and unattractive. It isn't any better, but it is no worse. I am hoping my body will heal on its own. 
    
      The great news is we are in Puerto Vallarta with our good friends, Bob and Karen Hankins, for a week of sun and fun!  We will have 2 holidays and 2 weddings to celebrate before we start the arduous transplant process.  
    
      It's all good.  I am so very thankful for a specialized doctor that I trust with a tried and true plan .  I am most thankful for a God who promises to be with me all the way and help me. Those of you who have offered prayers on my behalf are very much appreciated.  I know your prayers have helped me with treatment so far and has helped me in trusting God for strength and my well being.  I am convinced I can endure this treatment with God's help and I am not afraid. Thank you from the bottom of my heart. 

Chemo 7 & 8 Guest Author

September 28, 2016


I am halfway through my chemotherapy treatments.  I continue to respond well with very few adverse side effects.  I am praising God and want to thank all of you who take time to pray for me.  Your prayers for me make a difference in my treatment and makes me feel wrapped up in love.  Thank you.


Kerstin, our youngest daughter, graciously accepted my request to guest author a post for me.  She is a junior at Bethel College, studying American Sign Language Interpreting.  She is kind of a “Daddy’s girl”.  I pointed it out to her a few years ago and she said, “Yeah, but I always need my mom.”  That was good enough for me! – besides, I’m kind of sweet on her Daddy too!

Kerstin 3 months old


Cancer. What a scary word. Where is God is such a word? How can one simple, 5-letter word crush so many hearts and families? It does not matter how severe or treatable the cancer is, I believe hearing “cancer” spoken concerning a loved one stops everyone in their tracks. My reaction upon hearing my mommy has cancer was complete  shock that lasted a solid month. Dianne has asked if I would like to make a guest appearance on her blog to share whatever I want pertaining to her cancer, which I am honored and excited to do! We’ll see how this post evolves, but I would like to set out with the intention of sharing how I have been feeling and processing everything since I heard that terrible little word “cancer” used in the same sentence as “Mom.” Also, from here on out I will be referring to Dianne as either Mom, Mommy, or Momma.
The two months leading up to school I was at home and we knew something was wrong with Mom, we just did not yet know what. I knew she was having tests done and I would ask every couple days, “Do we know what’s wrong with Mom yet?” always to receive the response, “Not yet.” I was not particularly worried; I mean, God let her live through an awful bout of pneumonia just a couple months earlier! It was hard seeing Mom struggle to regain her strength and energy after getting out of the hospital, but my mind never went to cancer. During that time we were both experiencing symptoms of anemia and I figured that’s all it was except I knew Mom was having all sorts of other tests done.
Late August, I packed up all my things in Dad’s car to begin round three at Bethel College. The day before classes started, Mom, Dad, and Grandma Hall came to pick up Dad’s car and take me and my roommates out to dinner. It was a nice evening, I kept thinking to ask Mom if she knew what was wrong with her health yet, but I always ask and did not want to bother them with my redundant question that didn’t have an answer. I figured they would tell me once they knew. It seems I was wrong. I gave out hugs and said goodbye in the lobby of my dorm, but as they walked out I decided to follow so I could give a proper send off by waving as they drove away. Turns out that nudge to follow them out was the Holy Spirit who continued to nudge me into asking about the current test Mom was taking and if they had finally been told what is wrong with her or not. Those stinkers came to pick up Dad’s car but also to tell me Mom’s diagnosis only to chicken out!
I knew it was something big when Mom said we should wait for Dad to walk back to us so he could help explain. During the conversation they threw out her diagnosis, Multiple Myeloma, which meant nothing to me. It was not until Dad explained that multiple myeloma is a blood cancer that it hit me. Cancer? Mommy has cancer? I held back the flood until I asked about life expectancy rates with multiple myeloma and then a few tears escaped, which of course caused tears to escape from everyone else’s eyes as well. Mom was so cool and calm, she truly seems to only be sad due to the realization that cancer is hard for her loved ones to hear. It is a comfort to know and actually see Mom resting on God as her Rock and being content in what He has for her. I waved goodbye as they drove away and made it all the way upstairs and about a half a step into my room before the floodgates unleashed.
I am a crier. I cry everyday. Literally. Last year, my roommate asked, “Kerstin, I don’t want to sound insensitive, but do you cry everyday?” and my response was, “Yes, I do. I’m surprised it has taken you this long to notice.” I take no shame in being a crier, I honestly feel that I cannot help it, and if I do not cry when I need to then I am not someone you want to be around until I take the time to do so. It can be a happy cry or a sad cry, a few tears or full-on bawling my eyes out, but I do cry everyday. The exception was a full month period starting the day after I was told Mom has cancer. It was a weird time for me. I did not cry and I could not cry. I felt numb.
There were a lot of things going on that contributed to the shock; I had officially broken my engagement the week before, a new school year was beginning with a new roommate, and then to find out Mom has cancer? Well, it broke me. Thankfully I was only broken, or rather in shock, for a month. My mind could not process it all, but my body still tried. Every morning I’d wake up and be physically sick. When I would pause from schoolwork to ponder any of the emotional turmoil, I would instantly be sick again. It was frustrating. I basically stopped all emotions and continued to be sick every morning. At the beginning of October, I knew my problem was that I had stopped talking to God about our relationship and would only talk to Him on behalf of others. Realizing I was withholding myself from God helped me to see that I stopped trusting Him.
I became a follower of Christ when I was thirteen years old and have not particularly doubted my faith since then. I was not ready to chuck it all out now, but I was definitely struggling and doubting God’s faithfulness. I did not want to continue on my path of numbness to life, so I reached out to someone I know loves God, loves me, and seeks truth, but is also outside my life enough for me to listen to his advice. I prepared myself for a week to talk to my uncle by being open with God about my feelings of distrust in Him. My uncle and I were only able to FaceTime 45 minutes, most of which was opening the conversation to get to the deep stuff, but the little time my uncle was able to speak truth really stuck with me. The reason our conversation was so short was because it was my fall break and only chance to go to chemo with Mommy!
            I am really glad I was able to go with Mom to her infusion. It made the whole experience more personal and real to me. I was especially glad to meet her cancer friend; the three of us enjoyed talking the entire time. Over the next 24 hours I was still struggling to let the truth my uncle laid on my heart settle in, but it dug its way through despite my resistance. God pulled me close to Him when I was so focused on schoolwork that I didn’t see it coming. My assigned reading started talking about different cultures and my natural response was to ask God to give me a heart to love people as He does. Then I paused to stop my prayer because I didn’t want to turn to God, I wanted to stay stubborn. I consciously decided to try and finish my prayer rather than pull back and when I did I was not able to stop pouring out my heart to God. It was like letting the floodgates open and yes, I cried. I cried and laughed and beyond all I praised my loving Father who never left me and is always by my side even when I don't feel Him when I push Him away.
            To answer my own question, where is God in the word cancer, I’d say He is quite obviously in His peoples’ lives. I see His peace in Mom, His love in Daddy towards Mommy, and His unity in His people and our family all coming together leaning on Him and each other. God uses life circumstances to draw us closer to Him, but ultimately it is our decision through each experience whether we choose God or our own stubborn wills. I thank God for drawing me all the closer to Him because He knows I love Mom and I need to know He is in control and will heal her whether she be healed here or in Heaven. I personally am envisioning her healed here first! In case you are wondering how I am fairing emotionally, I have cried twice as I have been writing this post if that tells you anything (I can feel again, it’s a good thing)! May God bless you all, thank you so much for reading this and thank you most of all for praying for us.

I love you, Momma!
Your baby,
Kerstin Dianne

God was speaking through Moses to the Israelites, but I still like the reminder for myself, “…the Lord your God, He is the One who goes with you. He will not leave you nor forsake you.” ~Deuteronomy 31:6 (NKJV)

Kerstin 3 years old.  Love her in red!
Kerstin 2 years old. She was born with long hair.









We made selfies before it was a thing.  I never perfected my skill - Kerstin is the pro now ; )
 We are dressed alike, it was fun when she was 5.
Stephanie and I drove to Bethel to spy on Kerstin performing her first Chapel assignment last Friday.  She did a wonderful job and she was so graceful and beautiful.  I am so proud of her.

Kerstin 21 years old - where does the time go??  We don't dress alike any more because she wears all my clothes!
This pose is typical, she is a cuddler.

6th Chemo


October 10, 2016

God continues to bless me with easy chemo treatments.  I kind of enjoy going to infusion.  I get to cozy up in a comfy chair with a warmed blanket, knitted warm socks that Karly made for me, a soft infinity scarf from Amy.  They bring me snacks and I have 1 ½ hours to do whatever I want – read, write, sleep, watch TV.  I usually take more to do than I can finish in that time.  If I’m really lucky, my favorite person comes to visit me in between his cases

I was a little nervous about sitting with my acquaintance/friend for her chemo this week.  I didn’t know how we were going to pass the time.  Her good friend who usually went with her moved out of state this summer.  God is good though.  He laid a need on my heart and He helped me pass the time with her.  We (mostly she) just talked about family and cancer similarities and losing hair.  I drove her home (she can’t drive after her medicine) and I enjoyed seeing her house and yard and a cool old granary in the back.   It was nice.  I have always enjoyed hearing about people’s lives.  Phillis is about my age, she has 4 children – the youngest, 11 years behind the rest, is still in high school.  We met because of our daughters.  They were friends in elementary school and we ran them to each other’s houses.  The two of us also were the entire costume committee for a big overnight event for 4th and 5th graders at their school.  We are both Christians so we really do have a lot in common and are becoming fast friends.


Also this week, I had an opportunity to talk to a woman my age that just finished her second stem cell transplant for Multiple Myeloma.  It was great talking to her.   She gave me so much information about her experience and helpful tips.  She was very nice and invited me to call anytime.  This is how God takes care of me.  He prepares me to be able to handle things when they come.  This is why I can have joy in the middle of cancer. I know God loves me and has plans to help me as well as help my loved ones -whether or not I’m here or in heaven.  I see his hand in my life everyday and I am so very thankful I know Him.

Pictures, just for fun!



Ceremony Ambience
Our newest family members
Felicity and Katie