Good News

Feb 12, 2017
     Today is a great day and it’s not even my birthday! (T-39 days😉) I have been waiting for the day I get to go home from the hospital. The criteria for leaving are to reach 0.5 neutrophils for 3 days and having no other issues going on.  The last 4 days I have had neutrophils of TLTC which means, too low to count.  😟  Today, however, my doctor came in and told me my neutrophils were 0.4 and she expects them to continue to go up and if so . . . .
 I can go home on Tuesday!! 

      Northwestern is a very nice hospital, but I'd rather be home!!  I’m supposed to have some activity everyday and that basically means walk the halls.  I’m only allowed on ½ of the floor so the route is very small.  It takes 14 laps around to equal 1 mile.  I can’t walk and count that - even without chemo brain.  Since I’m neutropenic, I basically have to gear up in a HAZMAT suit to leave my room.   .  . . .  oh, and it isn’t sweaty at all walking around in a plastic suit and your nose and mouth closed off in polyester! 😉
     I have been fortunate to have a few visitors though.  Chris Walter came up one afternoon.  I forgot to get a picture of him but he really was here.  Actually I think he came more to visit Kriz as they are good friends. 😏 My friend Karen came to visit just in the nick of time as I recall.  She followed her part of hygiene protocol that was indicated on not-to-miss signage everywhere.  When she entered the room she said “I don’t think I’m supposed to touch you?”  I told her I didn’t care and threw a sheet over her and engulfed her in a hug.  She consoled me until I was able to stop crying.   I was having a weepy day. 😢 
She came Saturday as well, along with Bob.  They asked if there was anything they could bring for me, so I told them what I wanted ( 🍷) and, being the great friends they are they brought me some.  Kriz wouldn’t let me drink any -bummer!  😞 We played cards though and it was so great to spend time with them.
      I am so happy to be going home soon.  Mom will come to take care of us and I can’t wait to see her again. 💖 Stephanie plans to come up right away too, but she admitted to a sore throat and I know Kriz is going to be merciless about germs.  I’m praying for her quick recovery to perfect health.  🙏  I love it when she is around too!! 💗
     Thank you for reading my blog.  I am very thankful for your concern and support.  I truly believe my body would not have responded as positively without you.  I am so thankful for you.  May God Bless you in an unexpected way!   

Night view from my penthouse



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Transplant

February 6, 2017




 A lot (Scientifically) has happened since my last post, but for what I’m doing it has been pretty uneventful.

Monday, January 30, I was admitted to the Penthouse Suite, my corner room on the top floor.  The view is beautiful, even for Chicago in January.  I unpacked my bags, laid out my best blanket and put everything in place.  By the afternoon a bag of chemo was delivered to my new abode.  The nurse got me started and it only took 20 minutes to infuse.  In 20 minutes all of my immunities were blasted.

The next day, a large tank of liquid nitrogen billowed into my room carrying the stem cells that would bring me life, God Willing.  We had requested a chaplain to bless my frozen cells, we all prayed and the infusion started.  It was a very small bag.  I was done in 15 minutes and didn’t feel a thing.

My job now is to practice crazy germ awareness and prevention, and wait.  I am also cheering on my stem cell to find their way back to the marrow and start making healthy blood products!  “Go, little stem cells, go!!”, my dear friend Evie cheers via texting!

I have a great medical team and know this is the right place for me at this time. They are very knowledgably and practiced.  They are highly specialized - this is all they do! I’ve had nausea and other uncomfortable side effects but the team is very good at addressing ailments right away.  They are very vigilant taking vitals, blood for lab, monitoring ins and outs, checking for mouth sores, swelling.  . . . Nothing gets past them.

Thank you for your sweet encouraging words and your thoughtful cards and most of all for your precious prayers.  They mean so much to me and are vital for my life. Thank you soo much.



A volunteer from the Gilda Club 
stopped by and we made bookmarks! 
  

               
Karly knitted my hat and socks,    
Stephanie had this cozy blanket
made for me with a picture from 
Adam's wedding.  Love them!!